Huntington Disease Awareness Month

May is HD Awareness Month.  During this month, if you see a post on Facebook, or a blog about someone living with HD, please "Like" it or comment.

HD changes lives.  People who were once healthy and outgoing lose the ability to walk, talk, think, and reason.   They don't lose the ability to enjoy the company of others.  People living with HD can be difficult to visit if they become fixated on something, or begin accuse others of trying to hurt them.  Don't shy away from visiting.  As hard as it is on you, it is much harder on the affected person.  They are losing themselves, and can't change the outcome or the course of the disease.

Families who are living with HD experience grief on a daily basis.  They also experience joy.  Every day is precious, every day is the best it will ever be.  No opportunity to connect and love can be overlooked.  We know that the days are short, and we don't want to waste a minute.

HD has been characterized as one of the most devastating diseases known.  There is a lot of research going on right now, and sometime in the near future, there will be a treatment.  A cure is a ways off yet, but a treatment could be on the horizon.

People with HD also have something else.  They have hope.  Hope for the future, hope for time with families and friends.  Hope that every day can be enjoyed and relished.

The Goff family is living every day with hope.  Sometimes we are discouraged.  Sometimes we cry out in despair and anger at this disease.  Every day we have with Lacy is precious.  We often can't stay with him for long periods of time, but we try to make the most of the time he tolerates.

We have hope beyond this life, and that comforts us.  We also want to walk side-by-side with the friends we have made on this journey.  Our lives are richer for knowing them.

Give a hug to someone you know today.  If that someone happens to have HD, share your love and support with them.


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