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Showing posts from July, 2013

July 16, 2013

An old hymn comes to mind today (I can hear Elvis singing now...).
I am tired and so weary, but I must go along
'Till the Lord comes to call me away;
Where the morning is bright, and the Lamb is the light
And the night is as fair as the day.

There will be peace in the valley for me some day;
There will be peace in the valley for me, dear Lord I pray.
There'll be no sadness, no sorrow, no trouble I see - 
There will be peace in the valley for me.

When your family is dealing with HD, small things have big consequences.  I never know when something that seems so inconsequential will throw me.  Events seem to take time to sink in, and often I am not really sure why I feel the way I do.

We took Lacy to his neurology appointment last week.  For some reason, I hang on to those visits as though they are a lifeline.  After this last appointment, I think I have more clarity on what the visits are and what they are not.

We were able to get Lacy into the car, and to the appointment with very l…