"It's time..."

We have turned a corner in our journey with HD.  It is time for us to consider a higher level of care for our son.

With several falls in a month's time, and Lacy's transition to using a wheelchair exclusively, we have to consider what is best for him and for the people who care for him.  He's been to the ER so many times, cutting his face, forehead, and nose; breaking a tooth, suffering a mild concussion.  And now it is not even safe for him to use his walker any more.  Lacy seems to be taking the changes in stride.

We've been e-mailing back and forth with the staff at Life Styles.  We all have come to the same conclusion:  "It's time," one of the staff members wrote.

We don't know how to explain this to Lacy.  What will we say that can prepare him for a transition from a place he has called home for 7 years to a nursing home where he will have to follow a regimen that is not of his own choosing.  We will do what we can to ease his transition.

Kenny and I are praying for wisdom.  We are at a loss.  Somehow, we will find our way.  Somehow, God will make a way.  There will be a path; "Here is the way....walk in it."

Comments

  1. Uncle KennyOctober 8, 2015 at 7:36 PM

    Remember the time when it was time to tell Lacy about the death of a new friend. I asked him to walk with me to the mailbox. As I fumbled for words and finally came to the point that his friend Kevin had died Lacy said without missing a beat "Oh? You mean God changed his address?"

    ReplyDelete

Post a Comment

Popular posts from this blog

Suddenly...It's Spring

Spring comes without warning, it seems.  Suddenly everything is green, flowers are blooming, and the world is waking up.  New life is everywhere.  Robins are hopping around our backyard, some are building nests in nearby trees and shrubs.  There is an expectancy in the air. The cycle of grief is a recursive one.  Back and forth it seems to go for months on end.  Great sadness, numbness, depression, exhaustion; until one day a memory comes and it is not painful but poignant.  Rather than a tear falling, a smile comes and with it a hint of joy and a lightness of spirit. Ten months have passed since we lost our Lacy.  We made it through some big firsts; birthday, Father's Day, Thanksgiving, Christmas.  The anniversary date of his home-going is not far away. In these ten months, Kenny and I have begun to find our way into new patterns and traditions. Sunday afternoons have become a time for visiting friends, enjoying walks, or just relaxing...
Read more

Countdown

Four weeks from today will be two years since we lost Lacy. I keep getting reminders on my Facebook feed of the last few weeks of Lacy's life.  The last year, I took a picture of him every week.  I wanted to make sure I could remember him, and the good - and bad - times we had together. I feel a sense of dread about May 28.  I am thankful that it falls on Memorial Day, so we will not have to go to work.  I am also thankful that we took every opportunity to spend time with him.  The last time was 5pm on May 27, 2016.  Nine hours later, he was gone. As I drove away from the nursing home that evening, a scripture popped into my head:  ...that I may know Him and the power of His resurrection... (Philippians 3:10) That power has sustained us for nearly two years.
Read more

Day by Day

Alan is doing better since his hospitalization.  His outbursts are fewer, and are less "pitched" than before his med changes.  The staff assigned to him at his group home are doing well with him.  They have to pick their battles, as we all do, and are trying to keep him to a schedule. We took Alan to his neurology appointment this week.  Usually when someone asks Alan how he is doing, he just says "fine," but on this day he answered, "My knees are weak, and I have to lean over and hold on to things." After examination, Alan's doctor recommended physical therapy, as Alan is perilously close to falling.  While we don't know if Alan will be able to follow a therapists directions, or will even want to cooperate, we will arrange for a consultation. I can deal with the nuts and bolts of being an advocate and sometimes caregiver for my son, but I find it hard to maintain the focus I need when I hear his say that he is having trouble walking.  It is ...
Read more