Alive and Well

This last year, a documentary was shown during the Seattle Film Festival.  "Alive and Well" documents the stories of 7 people, 6 of whom are living with HD or are at risk, and one researcher.  The film highlights the joy and hopefulness exhibited by those who live with the effects of this terrible disease.

During this June's Huntington's Disease International Convention, the trailer for "Alive and Well" was shown, and attendees were encouraged to talk about the film to help raise awareness about HD and the fight to find a meaningful treatment and eventually a cure.

I was so excited about this film, I wanted to know how I could see it.  In fact, I was obsessed!  Thank goodness "Alive and Well" had a Facebook page, and I got on that page begging to find a way to get the film in a theater in our neck of the woods here in Northwest Arkansas.

I won a hoodie for posting a link to their FB page.  I kept bugging them for any information about distribution.  It seemed like forever, but it wasn't long, until Gathr began to ask for team captains to host distributions in various communities.  As a result, we now have a scheduled screening in Rogers, Arkansas on February 27, 2014.

It is so important to me that more people become aware of HD - signs, symptoms, research - and I want people to know that it is possible to live life to the fullest regardless of the disease.  "Alive and Well" is how I would describe Lacy, and the friends I have come to know who live with HD every day.  People who laugh, love, and most importantly LIVE!!

I believe that we are close to a treatment or even a cure.  Once that gate is opened and we see how to turn off or modify the gene that causes HD there will be so many applications to other diseases like ALS, Parkinson's, and Cystic Fibrosis.

Kenny and I are beyond thrilled to know that we can share this with our friends and family.  We are looking forward to February 27.  If you are near here, and can come, please reserve your tickets.  The link will be at the end of the blog, and I will include a link on the right side of my blog page.

If you would like to sponsor a screening, go to the Gathr website (you can get there from this link) and sign up as a captain for a screening in your area.  

Here is the link.  Maybe we'll see you there!!


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