Faceless Faces - The Huntington's Disease Project
Our son's name is Lacy Alan Goff. We are so proud of him, and of his struggle to keep striving to live independently. It is through a cruel effect of genetics that his struggle is so confusing and difficult.
I've called our son "Alan" in this blog for the last couple of years, but I have decided to use his full name now. He is a "face of Huntington's" and needs to be recognized. He should not be a faceless "face."
We had no way of knowing the kind of struggle we would face as a family with this disease. All of Lacy's life, this gene has been waiting to wake up and start it's relentless assault on his mind and body. It is a cruel disease and has no effective treatment or cure. A cure has been "right around the corner" for 20 years or so. Someday, a cure will be a reality.
There are so many others who have also been "faceless faces" but who have had the courage to be a part of the Huntington's Disease Film Project. Copy and paste the link below in the address box to view the trailer.