Faceless Faces - The Huntington's Disease Project

Our son's name is Lacy Alan Goff.  We are so proud of him, and of his struggle to keep striving to live independently.  It is through a cruel effect of genetics that his struggle is so confusing and difficult.

I've called our son "Alan" in this blog for the last couple of years, but I have decided to use his full name now.  He is a "face of Huntington's" and needs to be recognized.  He should not be a faceless "face."

We had no way of knowing the kind of struggle we would face as a family with this disease.  All of Lacy's life, this gene has been waiting to wake up and start it's relentless assault on his mind and body.  It is a cruel disease and has no effective treatment or cure.  A cure has been "right around the corner" for 20 years or so.  Someday, a cure will be a reality.

There are so many others who have also been "faceless faces" but who have had the courage to be a part of the Huntington's Disease Film Project.  Copy and paste the link below in the address box to view the trailer. 



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