"Sometimes I've believed as many as six impossible things before breakfast."

Saturday was our opportunity to watch the HDSA convention in Jacksonville, Florida via live streaming.

To say I had been excited about this event is an understatement!  I couldn't wait to find out what new treatments may be on the horizon, and what we can do to care for Lacy day by day.

The convention did not disappoint.  There are lots of treatments coming down the pike, and some are nearly ready for human trial.  The most promising is a disease modifying treatment that turns off the extra CAG repeats and allows the brain to begin to heal itself.  At this time, the only mode of delivery is through the spinal fluid, which necessitates an injection every few weeks.  Sort of like a mini spinal tap.  Although this would not be pleasant, I don't know anyone with HD who would think that was an impediment to getting treatment.  Researchers hope to find a better delivery system in the future.

One of the great resources we heard about was HDbuzz.net.  Drs. Ed Wilde and Jeff Carroll are the founders of this website.  These two guys gave the most layman friendly talk I've ever heard.  A quote:  "HD is the most curable incurable disease." This is so because we know what causes it, and so that is most of the battle.  

The quote that is the title of this blog post is from Alice in Wonderland.  It stuck with me because it seems an impossible dream sometimes to believe that one day there will be a cure.  Dreams do become a reality.  There is a lot of hope.  

As Marjorie Guthrie said:  "On the road to a cure, we need to care."  Those of us who love someone with HD are doing that day in and day out.  


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