To my HD Facebook Friends
The grief and sadness of losing and missing Lacy hits at odd times. I think I'm doing well, have moved past some of the worst of the pain, when a song, or a memory hits me and I'm weeping. I've learned to let my tears flow. The tears seem to heal the pain, and if I let myself feel the loss, I'm able to move on with my day once the worst of the sorrow is over.
We never get over our loss, but we get accustomed to the loss, and the hole in our hearts is not quite so tender.
I have so many Facebook friends who are experiencing that loss right now as their children, husbands, wives, mothers, fathers, siblings are dying from Huntington Disease. As I read their posts I feel afresh the pain of losing inch by inch the person you love. I remember how burying a child is impossible to fathom, even as you sit across from the closed casket. I cannot imagine the pain of losing nearly everyone you love to this disease - sometimes your spouse and all your children.
These courageous survivors still love, still work, and still pray for a treatment and a cure.
To my HD FB friends: You are not alone. I'm walking with you even if we are half a world away.