Praying for Comfort and Peace

I've not been writing much lately.  Since Lacy passed away on May 28, I've just not had the energy.  I pray for everyone everyday who has to fight this disease.  HD Robbed our son of his independence and finally robbed us all of time together.  The finality is so hard to bear.

We adopted Lacy Alan when he was 3 years old.  We knew that he was at risk, since his maternal grandmother had died from complications of HD.  He was developmentally delayed and had other difficulties, be he overcame so many challenges to be the very best he could be.  He was an avid reader, curious about the world, and loved to travel with us all over the United States.  He enjoyed video games and watching Matlock with me on TV during school breaks.

When he was 28, we began to see significant changes in his mood and personality. He had a grand mal seizure out of the blue. within 5 years he was refusing to bathe and was delusional. He was tested for HD, and it was positive.
By the time this monster of a disease took him, he was in a nursing home, bedridden and in diapers. He was humiliated by the indignities he suffered. We saw him every day, bathed and shaved him on the weekends, and told him we loved him every day.
He is gone at 37. Way too soon. I know so many others have the same sad story. I also know that someday soon we will have a meaningful treatment and maybe a cure. I will weep tears of joy when that happens.
For now, to everyone going through this difficult journey, I pray you are able to enjoy the time you have with your loved one. I pray that you will have the strength to walk this road. I pray for a treatment and a cure.
Kenny and I have a deep faith in God's mercy, and in His faithfulness.  We have never wondered where our boy might be - we know.  We know we will see him again.  The years until then seem to stretch long and lonely before us.  
Please pray with us for all those who are struggling with terminal or chronic disease.  The pain they endure every day is overwhelming.  Pray for a cure for HD, ALS, Parkinson's, Alzheimer's.  
Pray for the peace of God to be with those who walk a lonely road of grief and sorrow.


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