It's just not possible to write about a journey with Huntington's disease and be upbeat all the time. Watching as someone you love is slowly taken from you is cruel and so painful, there are not words to describe the experience. Yet, as with any disease like this, there are days when the clouds part, and a beautiful connection takes place that nourishes the soul. We took our boy to the doctor for a 6 month check up on Monday. It was heart wrenching for us. Last year at this time, we were finding out that Lacy had Huntington's. He walked in the office for that appointment quickly, and left just as jauntily. Monday, however, we had a handicap placard to get us closer to the building, and we walked behind him trying to keep him from falling. He held on to the wall, to chairs, and to counters. He was really unsteady. While in the exam room, he sat on the exam table, and had to have quite a bit of help getting up the step to sit there. ...
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