"Alan continues to be awesome..."

We received an e-mail from Alan's caseworker. This one line made my heart happy. "Alan continues to be awesome."

Comments

Post a Comment

Popular posts from this blog

Peace and sadness

It's just not possible to write about a journey with Huntington's disease and be upbeat all the time.  Watching as someone you love is slowly taken from you is cruel and so painful, there are not words to describe the experience.  Yet, as with any disease like this, there are days when the clouds part, and a beautiful connection takes place that nourishes the soul. We took our boy to the doctor for a 6 month check up on Monday.  It was heart wrenching for us.  Last year at this time, we were finding out that Lacy had Huntington's.  He walked in the office for that appointment quickly, and left just as jauntily.  Monday, however, we had a handicap placard to get us closer to the building, and we walked behind him trying to keep him from falling.  He held on to the wall, to chairs, and to counters.  He was really unsteady. While in the exam room, he sat on the exam table, and had to have quite a bit of help getting up the step to sit there. ...
Read more

Beyond Amsterdam

If you are the parent of a developmentally disabled child you have heard this one: You booked a flight to Paris - it was your dream destination - but somehow your plane landed in Amsterdam. Now, Amsterdam is not Paris, but it has its points. There is beauty there, you can see things you never imagined, you are entranced with its flowers, the lovely buildings. No, it's not Paris, but it's still great. And you feel richer because you have visited a place that you would never have chosen, but which has brought you great joy. This story is used to explain the initial confusion, but eventual joy in the experience of being blessed with a developmentally disabled child. It is a wonderful analogy, and certainly does capture the experience of a parent who is living a different parenting life than was imagined or dreamed about. However... Your child is now an adult. As comforting and empowering as the Amsterdam story is, it does not capture the experience of the parent of an adult ...
Read more

Countdown

Four weeks from today will be two years since we lost Lacy. I keep getting reminders on my Facebook feed of the last few weeks of Lacy's life.  The last year, I took a picture of him every week.  I wanted to make sure I could remember him, and the good - and bad - times we had together. I feel a sense of dread about May 28.  I am thankful that it falls on Memorial Day, so we will not have to go to work.  I am also thankful that we took every opportunity to spend time with him.  The last time was 5pm on May 27, 2016.  Nine hours later, he was gone. As I drove away from the nursing home that evening, a scripture popped into my head:  ...that I may know Him and the power of His resurrection... (Philippians 3:10) That power has sustained us for nearly two years.
Read more