One Foot In Front of the Other

This last week, our local television news program highlighted the "Transition Fair" at one of the area high schools.  Transition, for those of you who do NOT have special needs children, is the process by which our children move from high school to the wider community. We got on the transition bandwagon late in the game.  The thought of sending our son to a facility, or having him live away from us was abhorrent to our idea of what parenting a special needs child meant.  We were prepared to keep him at home, and to tend to his every need.  What we didn't reckon on was Lacy's desire to be an independent adult.  Lacy graduated from high school, and began to work part time in the supported work environment available in our home town.   So many people along the way told us we needed to make plans for Lacy to live independently  We resisted until two things happened.  One day Kenny came home from work, exhausted and uneasy.  He had taken care ...

I had a new friend ask me about Huntington's Disease recently.  I appreciate when folks genuinely want to know about HD.  In order to answer, I first asked I asked three questions: "Do you know what Parkinson's Disease is?" "Are you are familiar with ALS?" "Do you know something about Alzheimer's Disease?" Yes to all three. "Huntington's Disease is like having these three diseases all at the same time." My friend was stunned. Taking a hard look at this disease, straight on, takes a lot of energy.  It is painful and hopeless.  That is the truth of the disease . Our struggle, every day, is to take a long hard look at God's faithfulness. Think of Peter walking toward Jesus on the water.  I've never been in a boat during a violent storm.  From the few pictures I have seen - documentaries and such - I know it is harrowing to say the least.  The noise is overpowering, the waves and wind make it hard to stand up...